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Here to support you the Cornwall Cancer Cafe podcast with me, Matthew and me Emma
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Thanks to the National Lottery Community Fund for supporting this podcast. Well, welcome again to the Cornwall Cancer Cafe podcast and
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It’s always important to
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Re-emphasize some of the wonderful support work going on in Cornwall. Yeah, I think we want to talk
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More specifically about around Truro area, but there are other areas aren’t there that offer support. Yes
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So Carolyn screech runs a whole lot of cancer cafe
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Around Sanostale Bodmin
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Los with you. Oh, I think there’s another one
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And I think there’s also another one held in Lansing as well right up East almost over the border into England
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Oh that England land place and so there is a lot of support around but
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we’re going to just look at some of the
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Outreach and the in reach I suppose isn’t if that’s a word at the Cove because that there’s
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Tai Chi there’s
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Music therapy there’s
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This yeah, so we’re talking about the Cove, which is the McMillan Center at Trilisk
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What else have I had there I’ve had massage I’ve had Reiki and then I was taught how to do Reiki on myself
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We’ve done
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Relaxation sessions. Oh, yes yoga. I actually I’ve done the Tai Chi. Have you done the time?
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Yes. Yes. Yeah, so that that was I think that was a Monday evening
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So some of these sessions are in the evening
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So if you’re still working and you think oh
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I can’t access any of this stuff a lot of it actually happens in the evening after work
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You can finish work and then trundle along up to Trilisk park in the car park walk down to the Cove
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have an evening of
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relaxation or
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Distraction should we call it?
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And because it is a cancer treatment
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of course
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If you as you leave the car park just press the button and just tell them that you’ve been having a cancer treatment
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Or if you’ve got a blue badge if you’ve got a blue badge, it’s free parking
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Anyway, you just use your blue badge barcodes on the machine
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Yeah, the rubbish machine isn’t it?
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I mean how many times have you been stood there with your with your card trying to get the thing to do it?
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the number of people I’ve helped but
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Yeah, so but if you don’t have a blue badge if you are going to the Cove for a treatment
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It is a it is a treatment
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So don’t press a help button on the way out help button on the way out
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don’t feel that it’s not a treatment and you’re not entitled to it because you really are and
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You know, you’ve gone there for a treatment relaxation and the last thing you want is how then having to pay car park fees
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and
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We are also hoping to do a chat with the mustard tree at
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Derriford along similar similar lines about what they offer
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Still trying to set that up, but hopefully that’ll happen in the near future
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But what we are doing this week is we are talking particularly
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about
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craft
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Because I do like a bit of craft and we’ll talk about it because it’s another distraction
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I mean, there’s all sorts of ways you can distract yourself and we’ll discuss more about this later
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but at the Cove there is a lady called Emma Clark and
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Emma is
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Someone who has had her own
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journey with cancer she has had her own diagnosis and
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She now runs these sessions where you go in and
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Have a bit of a chat have a coffee or tea or whatever you want
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You know don’t have to have coffee or tea have water if you want
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Oh, we do need to mention the cafe. Don’t wait. Yeah, it’s the best cafe in the hospital. Yeah. Yes
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I’ve actually captured people walking along the corridor in the main corridor in Trilisk and gone come with me
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I’m abducting you to a cafe. I’m taking you to a much nicer cafe than where you’re going
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But the these crafting sessions are held in the cafe there on on a Thursday night
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So a Thursday evening, so just check with the Cove to see when the next one is on
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But we are talking now to Emma Clark who runs it and so she comes along with lots of different
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Things to use for making whether it’s cards or pom-poms or sometimes things that are sold
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At the Cove for Christmas. I bought a few things
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Christmas decorations that she and her crew have made and it’s such a lovely thing
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I went there with my mother and mother made a card as well with her
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So now let’s just go over and we’re in the Cove now and have a chat with Emma Clark
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So I started doing the crafting sessions and I think it came from
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wanting to give back following cancer breast cancer diagnosis in
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October 23
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I was
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extremely distraught following the diagnosis and
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The follow the two weeks after I had been diagnosed I came back to find out a plan and they suggested I came into the Cove
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after and I sat and talked to
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some of the ladies from the Cove and
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Just felt that I’d found my safe place
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I then went through a lumpectomy and radiotherapy
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And I’m now on
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Mixture of hormone drugs to prevent cancer for the next 10 years
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and
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During that time and previous to having a diagnosis. I’d always liked dabbling with
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Crafting and I’ve done bits and pieces
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But when I was recovering from the radiotherapy
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I found myself back in the arms of making cards and
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making different things using quilling and decoupage and just odd bits of wool like you said
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And I just enjoyed it
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It was a place that I went to and I get so lost in it that I
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Forget about what’s going on. That’s the key thing getting lost in it
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It’s that’s the important part. It makes your brain take itself off somewhere else
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Yeah, and I do I just can sit there cutting away at little pieces of paper
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And I kind of look at my husband when I was doing it and even now at home and he’s he just goes
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Oh, she’s fine sort of and I’m so fine because I just have my scissors and I just sit there and get lost in
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What I’m doing and I think I’m going to make something that’s really lovely and I just enjoy the process of going through it
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And then I did that
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And I came and was using the Cove a lot
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So I had Reiki sessions here and I had massage both which I would recommend
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I’d never had Reiki before but the relaxation from it was amazing. I
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Have been through quite a journey with my family with cancer
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And I had to have quite a lot of support psychologically
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And they were amazing at the Cove. They gave me 18 months support with a psychologist
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Which also led to them finding that I had a PTSD
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Diagnosis through when I was told about the actual cancer breast cancer diagnosis
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And they that journey was massive for me
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And I think if I hadn’t been through that time with Louise, I wouldn’t be where I am now because we went on a real journey
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And I just wanted to give back. I did other little bits that the Cove were offering
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They did a Look Good Feel Better course, which was one day and I loved it
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And so I asked if I could set up a crafting chat group and
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Other people call it knit and natter
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There are many other names for it
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And
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What I what I wanted to do was I wanted to give an opportunity
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where a group of people could gather and
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Yeah, we’d have like-minded somewhere that maybe we enjoyed craft maybe we didn’t maybe there wasn’t that but we could just gather and
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talk and it’s open to everybody who has had a cancer diagnosis or is supporting somebody with a cancer diagnosis and
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We wanted to set the group. I set it up with one of the girls that I met on the hope course as well
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Who’s an artist so she’s she I sort of say to her can you just think of another idea and between us
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We work out different ideas
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And we started to meet and the first week that we met
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there was just myself and Joe the other lady and
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We just sat there and talked and it was just wonderful because we talked about what had happened
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We do it once a month. It’s the first Thursday evening of every month
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from five till six thirty and
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We just sat there and talked and we talked a bit about
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What had happened over the previous month that may be related to cancer or related to?
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Changes in drugs or a bit of a oh, I’ve seen the I’ve seen my
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Consultant that sort of conversation
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But then we would talk about other things and all this time we would sit there crafting and as we crafted
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We kind of all lent more towards the crafting and sometimes there was just moments of silence and
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others have now joined and
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We find ourselves
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making all different kinds of things
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with
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Opportunity of using your hands and while you’re using your hands you talk
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Yes, so it eases the conversation. It’s a catalyst. Yeah
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Absolutely, the crafting is definitely the catalyst that enables us to talk and
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We enjoy it and I think that’s the main thing because you get enjoyment from creating something and
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Probably 90% of the times we actually finish what we’ve done. So it’s not a take home and carry on at home
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it’s oh look we’ve made pom-poms and
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You know just to sit there and make half a dozen pom-poms is great fun and you sold some for Macmillan as well
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yeah, we’ve done quite a bit because I wanted to kind of support other events and they held a
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Summer fair not last some of the summer before
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And we had quite a big craft stool and we put all the stuff that we’d be making on that
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And raised money and then Easter just gone
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We did a stool again and we raised some money again for the Cove
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So it’s giving back to the Cove. It’s supporting the Cove and hopefully helping other people
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because some of the treatments are costly and if we if we can raise some money to help another person have
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All the stuff that I’ve had that would be amazing
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But at the same time we’re also I’m also helping others and myself
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Because I go and we sit there and make pom-poms make cards make snowflakes and
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Use our hands and while we’re doing that
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You’re listening to the Cornwall Cancer Cafe podcast visit our website
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www.cancercafepodcast.org
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Some tips here because what about the people who can’t get to a crafting session at the Cove who may be
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A little bit rurally
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Cut off and stuck out there
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What would you suggest to them to take some of what you’re doing to help them?
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That’s a really interesting question. And actually my brain’s gone into a bit of a washing machine
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I get those frequently you you you experience one of mine earlier
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But I’m thinking that maybe because I’ve done a lot of painting on my own at home
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And I found that therapeutic just on my own
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painting so you don’t
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Necessarily have to be with people to get the benefits of the therapy from crafting
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Oh, absolutely. No the benefits from crafting it is about taking yourself on a journey. I think
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And I craft at home on my own all the time
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Like I said about my husband sitting there thinking oh, well, she’s off on her own
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She’s quite happy and I literally I am
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For me, I think that if you find and if you go to there are many
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Crafting shops where you can go and pick even a color by numbers up and literally by coloring in the different colors
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you’ll create something and
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Actually when we’re on a journey and we’ve been on a journey with cancer
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sometimes we just need to know that we can do something and
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There are times when treatments really horrific and really hard
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There’s something different from just sitting in a chair with like a cannula in your yeah
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Yeah, exactly. And that when it is like that, we should be thinking. Okay
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Well, let’s and even if you are having your chemo session, then there’s no reason why you couldn’t sit there knitting
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When when I was having my stem cell transplant at Derriford, yeah
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I took a whole lot of colored pencils and a pad of paper with me and
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And I spent every day
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Doing a picture and coloring in and that sort of thing
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I found that was great therapy for a very very testing time which was
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Traumatic. Yeah, absolutely. And that’s what it is
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We’re you know going through cancer is traumatic and if by doing something
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Creative and I think that’s what it is. We’re using the artistic part of our brain. We’re relaxing other parts
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We’re going to increase our endorphins and our happy hormones
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Because actually if we are doing that then we’re gonna feel more relaxed and
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That’s really important for us to feel relaxed. There’s a lot of
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Anxiety that swirls around your head all sorts of time and actually I got up at like two and three in the morning
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When I was most anxious and I was painting then yeah
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Yeah, you’re not alone there. Definitely and that’s what it’s about
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isn’t it they we need to relax our bodies and I
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Definitely feel that by doing crafting it will help the group also
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Has enabled us to just be able to talk hence the chat part of the group and that’s been very interesting
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I remember when I was told that I was on to Mexifen and I was going to put on to an estrosol and I had
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all these questions and I hadn’t gotten my answers and and I turned up all
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Like my my mind was very like what’s going on? What’s going on?
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Actually, I sat there and talked to the girls and I just was like, okay, I feel better now
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Alright, and when I’d finished I’ve made something and we’d had a good chat and I had a plan
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My plan had come from just sitting there and actually it’s not necessarily about anybody giving you a plan because
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They might not have a plan
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But sometimes it’s about you having the opportunity to process a plan and come up with your own thoughts
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Yeah, I
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Was very glad that so when we came into the cave earlier on you
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Express as much surprise as I did over my pottery skills. Oh, that’s just amazing
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Like and there we go crafting again and another thing that the Cove are offering and this is I you know
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What’s your setting up and doing is massive because actually the Cove does so much
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But actually I think that we they are trying to reach out to those places which are harder for us to get to we are in a
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County that has got lots of rural areas and I think that by them trying to do different activities
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like they were saying one of the
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the
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Pottery places is now at st
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Agnes and another ones that resilient if we start to get things going on that are happening in other places
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But it’s all outreach from the Cove. It shows how amazing it is. And again, it’s crafting but we’re talking aren’t we?
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And that’s really important to or you just sat there in your own world making your own pot, which
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Did come out extremely well, Matty
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Thank you very much. Okay, so
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Tell me when people can
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Come to a crafting session. How do they sign up and just give you all that sort of information?
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Yeah, so
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Like I said, the crafting sessions are the first Thursday of the month and they run from 5 till 630
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You’re more than welcome to just drop in just come just many
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Absolutely. Well, we’re all we’re all going through a journey all of us and
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You know if you don’t want to make a pom-pom, but you just want to come along and have a bit of a laugh
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Then that’s all okay, too. We just it’s just an opportunity to come
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Times maybe seem a little bit strange 5 till 630
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Well, you know I work full-time and I wanted to set it up
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And I also think that actually it gives other people that are working a time when they can come after work as well
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So I’ve tried to keep it so it’s not too late
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So we run that group and I think also maybe from this group
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We can work on putting out something else a bit more for people that are a bit rural
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So my head’s having a bit of a washing machine moment and maybe we can talk more about that in the future
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Thank you very much Emma for chatting to us. I’m sure we’ll be chatting to you again
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Share this podcast on your social media. So others may benefit Emma Clark
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they’re a lovely lady and I just so enjoyed sitting there and
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Using some wool and glue and it’s almost like being back at school
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All that sort of stuff
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Did you get to peel the glue off your fingertips
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What a memory that is yeah. Yeah. What was that copy decks? I think I don’t know. It’s just white glue, wasn’t it?
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anyway, so really crafting is just one example of
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distracting yourself during
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cancer and
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Because your mind if it’s not distracted it can go all sorts of places
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Yeah, it can go round and round and round or it can go down deep rabbit holes
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and then you you know, you might think ahead and think what if this what if that and
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Actually, you don’t know do you because you’re living with it at the moment
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And you just have to wait and see what your body’s gonna do with what it’s being given. Don’t you?
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so distraction is a very good tool and
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a lot of people might not do craft at home or as a matter of course, but
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You know, it could be a good thing to take up or something similar
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I’m not saying you know make you get glue all over your fingers. There might be other things you can do
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I mean even gardening gardening is a great thing if you’ve got a little space
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Oh, yeah
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I mean, I’m we’re sat in your flat now and you’ve got a little garden out on your balcony that you
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Quite often forage and try and offer me food
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No garlic offer to garlic
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Tell the garlic here episode what happened?
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Well, it was quite simple really was that I came over for lunch and you just overloaded the garlic a bit
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It made my eyes water. I have to say it made my eyes water, too
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And every time I say to you, oh, I will make you lunch, but there’ll be no garlic
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Yes, it’s our ongoing joke now, isn’t it?
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And cookery that’s another diversion, isn’t it?
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Yeah, I think it’s a good thing that some people really enjoy making breads and that whole needing action of actually hand-making bread
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Yeah. Yeah. I mean making bread is a really good thing, isn’t it?
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Especially if you’re feeling a bit angry and you can bosh that bread dough
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But it’s not something that I do
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And the crafting thing, I think I was trying to really I trying to think why don’t I do crafting now?
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I’ve got funny eyesight and I
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So I wear contact lenses and I’ve got they’re called single vision lenses
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So I’ve got one either use for distance and one for short. So when it comes to doing things like crafting
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I can’t see properly. I can’t see well enough to do the small things
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Which I think is one reason why I do date why I don’t do that
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But also my life is also quite full with music. So I don’t tell us about that
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So I’ve talked about it before
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Just pretend this all to do with brain fog, yeah, okay, so brain fog
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Oh out of the brain fog
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So I’ve been playing a saxophone since I was about 13 years old at school. I was given so many opportunities at school
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So I’ve carried on playing so I play I play I’ve got four different saxophone
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So I’ve got soprano and alto a tenor and a baritone
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So I play the alto sax in a big band skyline a big band
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I play the tenor sax in the Falmouth soul sensation band and I play the baritone sax in the fortune saxophone quartet
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so that fills up a lot of time with rehearsals and gigs and
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Whilst i’m playing I am concentrating so much on what i’m doing reading the music
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Listening to what’s going on around me and you’re listening to yourself. You’re listening to your tuning
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You just absolutely forget everything else that’s going on
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And if you’re playing at a concert or a gig you’re also you’re looking at your audience
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You’re getting feedback from the audience
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You get the feel good factor from that. So
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um
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Yeah, that’s what generally fills my life and and on top of that. I drive a dive boat
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So being out on the water you don’t dive a drive boat
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No
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I
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Sometimes dive off the dive boat as well
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But just that being on the water. Um, so for those out there that do paddle boarding kayaking
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Do bits on boats fishing that sort of thing. The water is so so I don’t know it just sort of takes you away
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Um, especially if the sun’s glinting off it or it might be a rough day and you’re watching the waves crashing
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Um, so yeah, and and then we move on to another subject there don’t we weather watching
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Oh, there’s so many things that you can get involved in aren’t there?
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I think it’s time to just have a little excerpt from the skyliner bands that I went to see
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Not long ago
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Just a little excerpt there from the skyliner band if you get a chance to
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See them, they’re really good. Lots of people dancing as well in that room
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Yeah, well lindy hop has become so so popular recently and because we play that sort of music the the swing music
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Um every eight about every eight weeks now we do a little gig on a tuesday night harrick social club bit of a plug there
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Um, but the lindy hoppers come along and dance to us all evening and they go home very hot sweaty and very happy
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And it was great watching them. So that’s your distraction. I mean you’ve probably noticed in the other room
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I’ve got my distraction out on the table. Yeah, so a bit of painting going on there. Yeah
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Well, i’ve been so busy with this podcast
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recently that I haven’t done much so
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I got back to doing a little bit of painting
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And i’m doing one of st michael’s mount actually from a watercolor I did last year
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And that really does take my mind off things and I I painted a lot of the way through
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My cancer treatments, uh, there’s all sorts of paintings lurking around here many of them done during treatments
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It’s a great way of diverting
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Attention from as you say your mind goes down those little warrens rabbit warrens
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There can be other animals, I suppose
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I’m sure we can come up with some if we thought about it long enough
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I was going to ask you so during your treatment
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Did you find that you wanted to work with um wanted to work with particular colors?
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Good question. I think one of the things I developed during treatment my mother would uh back me up on this is
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skies
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I really focused in on skies clouds. Um
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All that sort of thing and because I suppose
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uh from my flat I see a lot of sky out the window
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And I I sit on the sofa. I’d be sitting on the sofa not able to do anything at all
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And i’ll be staring out that window just watching the clouds and they ended up
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on my paintings
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Yeah, so you’ve sort of turned into an amateur weather watcher
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But then you’ve interpreted it on your in your artwork and you mentioned that you do watercolor
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But i’ve seen you working with acrylic. Is it?
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Yes, I use acrylics and oils and a few other bits and bods
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Because one of the inspirations actually is at the cove
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You’ve got curt jackson paintings a copy well prints of them and he’s an amazing artist because he uses sand
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In the paint he uses stuff off the beach within the the actual paintings and it’s worth going down to
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St. Just to see his gallery there his exhibition because it’s free entry. That’s worth mentioning. Oh, wow
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Yeah, I mean i’ve also seen those pictures and they’re enormous. They must be um, what 10 foot tall by
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Seven eight foot wide. I have to tell you that the originals in the gallery for that size are about 30 000 pounds
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Oh, yeah, I carry that around in my pocket, you know
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I’ll have two please
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Oh, well, they’re worth it aren’t they they’re they’re brilliant pictures and actually again, you know
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Distraction wise because one of them is halfway down the stairs, isn’t it?
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As you’re coming from the treatment area and I quite often i’ll get halfway down the stairs and i’ll just stand there
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And look at it
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And a friend of mine is is he used to run an art gallery and he’s been sort of teaching me how to appreciate art
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So i’m trying to look at these pictures in different ways
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And it’s sort of like using different emotions whilst you’re looking at at pictures as well
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So and then there’s one
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Or as you come in at reception that really faces you which is the first impact
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Yeah, and they’re beautiful aren’t they they’re absolutely beautiful
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So I think I might be taking a trip down to st. Just to go and have a look maybe not purchase
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Um, but go and have a look at his artwork because uh, some of the even the smaller ones
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There are eight thousand five hundred
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The thing is though the number of hours that he would have put into it
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I mean some people go why is artwork so expensive? Well, if you saw how many hours that um painters put into it
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You know, they’ve got to make a uh, they’ve got to make enough money to live on
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And also to be able to do the next project but also, you know, you think about consultants and professors, whatever
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They are at the top of their game. They get paid well. So why why shouldn’t we pay artists talking about time?
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We’re coming to the end. So quick hug quick hug big hug from us because when you give a hug you get a hug
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Thank you so much for that and we will be back with you again next week
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And you can find us on chaos radio and coast fm as well if you’re not already listening there. Bye. Bye. Bye
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Thanks to the national lottery community fund for supporting this podcast