WEBVTT
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You’re listening to the Cornwall Cancer Cafe podcast with me Matthew and me Emma. Thanks to the
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National Lottery Community Fund for supporting this podcast. So we have already had Dr Becky
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Hopkins with us talking about the GP relationship with the cancer patients. What did you learn in
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that one? I learned quite a lot actually and even off camera. I was pummeling Becky with
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the questions as well so hopefully we’re going to find out some more now. Yes because it was
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mentioned in that podcast some other services which come out of surgeries which you might not
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initially think are anything really to do with that journey but so welcome back to the podcast
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Just tell us a bit about some of those other services. Well thanks very much Matthew and
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firstly it’s a pleasure to come back to the podcast as well which is great. So yeah absolutely
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so the primary care team itself isn’t just doctors or GPs it’s a much wider team actually
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and has expanded even more over the last few years and there’s a lot of people that are in
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the team that can help support people and support yourself, support families as well
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and so there’s a whole host of people that deal with things that aren’t particularly
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kind of medication or related but actually really are still important or as important.
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What sort of things? Social prescribers are available to help you to feel more connected
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to your communities and can deal with a whole range of things and they can help
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you navigate different things that are really important to you and that may be sort of social
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things that need sorting out. They might be able to direct you to things like financial
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things or to social care a bit more. They can connect you to leisure groups and support groups
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around. So I would hope that they could really connect people up to what’s going on
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in the cove for example and also other well-being groups as well. So there’s a whole host
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of stuff. I’m in St Agnes, we’ve got a thriving community of different other social groups
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that people might not necessarily be connected to or aware of.
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Connecting people to things like this podcast. Absolutely, so all of those things are going
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to be super important. We know that loneliness is very painful and actually impacts on health
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quite a lot. So it’s kind of addressing those things as well to help people feel more connected
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and also improves outcomes for people just generally really and their well-being.
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We’ve got other people such as care coordinators. They can be really helpful to help you kind of
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navigate, can be quite a tricky system at times. Things such as transport, they can
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help assist people with that and other aspects as well. So we’re kind of really
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netting all the bits that are kind of more non-medical but also really impacts on people.
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So addressing those kind of more social aspects. So we’ve got those things. We’ve got the
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obviously work very closely with the district nurses who can be very helpful for things
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particularly sometimes if you’ve got a kind of a line insertion that needs
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looking after in the community. They can help with kind of continence things, wounds.
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The district nurse come around to do some injections that I wasn’t happy about doing.
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Yes, absolutely. So there are some injections need to be done in the hospital but there
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are quite a few that can be done in the community and they can help with that as well.
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There’s a whole host of different things. We’ve got social prescribers, care coordinators,
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the district nurses, we’ve got obviously Macmillan nurses or palliative care nurses as needed
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and there’s H.U.K. will sometimes come into this as well. So we’ve got lots of things
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like voluntary sector organisations that can be really put people in touch with as well.
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That’s really important moving forward and the amount of support that people
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and Macmillan of course as well as being one of those things but all of them together
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means that we can provide more holistic care on what matters to you in the community.
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Have you used any of those?
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I was contacted by, in my head, I called her the wellbeing champion in the practice.
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So that’s your social prescriber that you’re talking about, sort of.
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Yeah, you’re sort of nodding but yeah.
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There’s different ones. So there’s social prescribers and there’s health and wellbeing
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coaches and they’re quite similar in what they will do.
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I call them wealth and hell being coaches.
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Lovely, yeah.
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This lady wanted to check I was okay. She wanted to talk about what I needed,
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what I was doing, what I wasn’t doing and if I needed any signposting anywhere or needed any
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help. I’m hearing you talking about you’re not just caring for the medical things,
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you’re caring for the whole person, aren’t you? And what the whole person needs because
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you mentioned transport and things like that. Not everybody’s got access to transport.
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Must say I live in Gaharic and the buses are infrequent though.
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It’s a really important point actually. Access to healthcare is very different
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if you live in a very rural or coastal location to perhaps if you live in Birmingham where the
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buses go every 10 minutes. So being able to get into, access your healthcare, we have people
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that won’t go for their investigation because they can get there on the bus that might
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involve two bus changes but they can’t get back so they don’t go to the investigation.
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So all of those things that we’re very mindful of both within the wider system and
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also at Trilisk as well. In terms of how can we, how is people’s experience being able to access
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services and what inequalities does that mean for people’s health if we don’t address those
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things. So all of that has got a lot of attention at the moment and rightly so.
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And lots of change is happening.
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Lots of change is happening. So the whole thing around
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kind of what we call neighbourhood health which is a kind of very,
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it has been wanted by the health system for a long time actually. It’s now starting to gain
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traction and so there’s a real key shift for all sorts of things. So hospital to community,
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so making sure that for people who need to go for their acute hospital treatment be able to
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go there and the people that need to have community things are in the right place at
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right time. So it’s sort of getting it right first time is a key thing within the health
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system at the moment and people going to the right place at the right time.
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So all of those things are so important and also making sure that care is delivered closer
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to people’s homes rather than having to go into a hospital that involves you know a 45 minute
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trip in.
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Well I mean the thing is we are going to talk, we’ve been talking with Dr David Tucker about
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and I know he’s very keen to talk about a lot of developments but some of the developments that
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he will talk about are in the drugs and how those drugs change a lot of that and you had
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an injection didn’t you, a Key Truder wasn’t it?
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Yeah I did yes well remember so I was on immunotherapy for 12 months so I was having
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nine sessions of infusions. When I came to my ninth infusion I didn’t have an infusion I had
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the new injection which you know I found out about the week before and it was like oh you’re
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going to have the injection, oh am I? So I felt quite honored to try this new injection
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but it was yeah it was my ninth treatment so I wasn’t really able to
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what the difference was between the others because I think I needed more than one
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to try it out but yeah I was absolutely blown away because I’d only heard about it on the
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news the week before, went to see the consultant and bang there we are Trilisk is
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in the forefront of doing loads of things and Dr David Tucker said that actually didn’t he that
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Trilisk is one of the hospitals that as soon as something comes out they’re on it
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so that must really help you in the neighborhood side of things does it?
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Yeah absolutely and then and obviously you know cancer treatments are evolving at a rapid rate
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and that’s only to be you know sort of celebrated really a lot of those injections
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are going to be very specialist they are going to need a lot of sort of secondary care monitoring
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so specialist monitoring we wouldn’t be doing those sort of things ourselves in general
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perhaps is because they are so specialized what do you get when you mix live music
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cancer that would be the end of it but it wasn’t and i thought to myself you know i’ve
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had a good life and now every day is just a better day here to support you the Cornwall
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Cancer Cafe podcast i did notice there was a news story which actually came out of Plymouth
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development for checking you know moles and where it was a way of taking a photo of the
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mole yourself uploading it to an app and then someone would have a look at it and then that
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would lead to whether the GP should get involved there’s lots of exciting things around all of
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about sort of um and we call it analog to digital about what what things can people do
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that’s quite close to home so i’m very aware of those those kind of initiatives they need a
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lot of testing and to make sure that they’re safe and the pathways are all all fine and so
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there’s possibilities of those sort of things in the future and at the moment they are still
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trying to do that kind of thing closer to people’s homes by having the photograph clinics
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and community hospitals so that’s where we’re at in call i went to one yesterday with a little
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thing on the side of my nose i exactly went to that yeah absolutely then the consultant will
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look at those pictures and then advise accordingly and so that’s so some of those
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things that may be thankfully not the cancer they we can kind of manage it more in general
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practice and the ones that are the cancers then will need the specialist treatment so there’s
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whole host of things that from that perspective and there’s some been some really that’s quite
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um has won awards actually to risk of one awards for that in terms of their dermatology
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um kind of pathway because of the those photographs and and that side of things and
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also i went to the dentist in redruth the other day and i’m not sure if it was
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something was just interesting to the dentist but um he saw that i’d had non-hodgkin’s lymphoma
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and you know he started feeling around but the dentist has a part to play in some oral cancers
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absolutely so every time i go to the dentist they always do an oral cancer check and
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probably they they will do for all adults and that’s really important and they can
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directly refer in um for for those sort of things so there’s lots of things the different
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ways that you can kind of seek health um and of course we we’ve got lots of exciting things
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coming with the digital going back to the kind of the photographs and the dermatology side
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of things as well and we’ve got ai coming in as well the artificial intelligence side of it
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which is a whole other might be another podcast all together i think it is you can
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i can see the excitement in your eyes and a lot of this yeah what is the thing you’re really
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watching right now i think all of it’s it’s very exciting to me because i can see that we
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could be on a real change in terms of health and how we deliver health in the uk and so
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that is really exciting the there’s a lot of things to be worked out with regards to that
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but we could be providing a whole host of things and there’s a lot of more of kind of
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collaborative or integrated working that’s happening um so that’s kind of why i’m on the
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board at Trilis because i can uh we can talk together more about what’s important to patients
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what the pathways are where are the problems with any pathways what things do we need to
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kind of sort out to get things better and we know the nhs is under a lot of strain
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and you know the all different aspects of it so how can we get it to be working a lot
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better there’s so many exciting things that are happening and there’s a lot of things around
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kind of how can we talk through things so that patients get the right care at the right time
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so there’s lots of lots of things the social prescribing and neighborhood health and the
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involvement of the voluntary sector can really provide a kind of neighborhoods health in the
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you’re living in so that’s about promoting wellness and you know and your well-being
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and good health you know and so that’s that’s important and a lot of people are living with
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cancer and how can we make their lives better while they’re living with their cancers as well
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so all of those things are important and it’s kind of what gets me out of bed in the morning
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Emma I mean what was just said there was which sparked a thought in my head is that
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not everyone’s cancer is curable so they need a lot of ongoing care don’t they
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yeah and the thing that that popped up in my head was joined up thinking we’re finally
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getting there with joined up thinking with all the you mentioned voluntary the voluntary the
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the GP the the district everybody’s starting to work together and this is what we need
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and it’s going to improve the NHS outcomes isn’t it because with everybody involved
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everyone’s going to be working together and there should be less duplicity going on
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and fewer holes that people drop through so it’s going to benefit everybody I mean it
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sounds really really exciting but your question about people living with cancer
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I think the the neighborhood side of things is probably so so important to those people
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and it’s not only living with cancer sometimes someone might be cured of their cancer
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but the after effects of it whether they have had a mastectomy whether they’ve
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you know had a prostate operation and whether it has changed their personality as well
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all sorts of different things I mean that must be of you know ongoing development too
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yeah absolutely and it’s so individualized to the person as well so it can be all of
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those things that you mentioned there might be that they’ve got some sort of neuropathy from
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their chemotherapy for example yes tick yeah or you know sort of kind of skin effects from
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there’s all the whole hope there’s a whole host of stuff and it’s kind of kind of managing
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those symptoms but also you know sort of you know having had cancer you it’s it’s something
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that’s always there like a cloud in the in the sky for you and any little pain twinge
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you know it’s absolutely and it’s a it’s very valid and and natural to be worried about that
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anything like that you know it sort of brings back the panic the sort of oh my gosh what’s
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it doesn’t take much to trigger someone who’s been through the mill it’s the anxiety isn’t
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it we’re back to anxiety again aren’t we and it’s very valid actually and a natural thing
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to feel like that in that situation you’re you’re you know the the dash the warning light
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comes on earlier on the dashboard for you than perhaps somebody else because they haven’t
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been through the the same experience and we recognize that very much actually and that’s
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one of the roles of the GP would be to go this is we’ll we’ll take your symptoms seriously
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we’ll have a look and see what it is oh we’re okay actually you’re you’re okay don’t worry
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this time we’ve looked into and this is why we don’t need to think about that now or actually
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we do need to think about it well we need to to send you to to a specialist so there’s
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there’s different things that can do but we see it quite a lot for people who’ve been
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one of the things which I noticed which changed to my benefit as a cancer patient
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from the COVID era was the way that surgeries operate and because I had very little immune
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system for quite a while and and I was always worried about going into the waiting room
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jammed with people coughing spluttering and ill but since COVID it’s a lot of waiting rooms
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have been organized so there aren’t that many people waiting and if you’d have seen the
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waiting room at St Agnes yesterday it would have been a different answer but but but but
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but at the same time though my surgery have been very happy to work with me so that they
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waiting in their cars in the car park and then they phoned them when they were ready to go
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and they do that they’ve been doing that with me so that was a a new thing learned through
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COVID it is there was a whole host of things that came in very quickly in COVID and quite
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a few of them were beneficial you know so even for us to have things like laptops at
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home so we could could do things from home phone appointments became much more you know
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available or kind of now a whole host of things so contacting your GP by a message
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online all of those things have come in since COVID so there have been definite benefits
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and I think particularly if you’re kind of immunosuppressed it’s more than reasonable to
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say I’d like to wait in my car can my GP let me know when I can come in and so we’re very
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aware of that and we had to adapt very quickly during that time as did everybody else
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as well so I think that there are definite well there’s benefits to going through a pandemic
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but if it’s a silver lining those are the things that are
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tough circumstances in history always bring on developments you know you can look at any
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history I think can’t you and you know things develop out of it yeah I mean wars and things
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like that it’s lots of surgeries are developed during wars aren’t they which
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as you said is the silver lining that we have to take from it so
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but yeah COVID changed so much so quickly and we’ve adapted really really well
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and I think the NHS app came out during COVID as well didn’t it
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um as I remember or just at the end of it I as I recall but um it’s certainly
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evolving quite a lot um and how does that help a GP well in terms of um sort of
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people requesting medication they do that mostly on their app now which is really very handy
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because we’re not just dealing with appointments but we’re dealing with people’s medication side
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of things as well so that’s helpful having your investigations on your app means that people
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will have more ability to see their records and things are on there and that’s gone really
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quite well actually I mean I’m sure there’s the things that haven’t gone quite so well
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but overall I think it’s really important for people to have more ownership of their health
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record so all of those things are are great actually I think the NHS app could do more
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okay so clearly you know there’s times when you’re seeing a patient and you think
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wouldn’t it be easier if I could just do that or that I mean does that does it happen
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and you write that down and you go and you you have a chat with someone absolutely
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it’s a you know it’s kind of evolving thing and there’s always something where you think oh
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well we if we did that it could be better or that side of things and some of those things
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are national things and others are local things and if um you know you’re in a practice
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where you can can say look I’d like to think about this development x y and z um then then
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that can be taken on board so there’s a whole host of stuff and you know in terms of
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looking and managing your health wouldn’t it be great to go your your blood pressure is this and
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you need to your next time that you need to go for your blood test is our next y and z
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date so there’s a whole host of things that could and probably are in development with the
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NHS app you’re listening to the Cornwall Cancer Cafe podcast I had to have a catheter
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which I called Clarence Clearwater you sit and think how am I going to cope after surgery
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when I was diagnosed I really just didn’t have anywhere to go with my feelings I think
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it’s about giving them support and knowing that whatever their situation is there is always
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someone there visit our website www.cancercafe.org I remember when I signed up for the app I had
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contact my GP surgery and asked them to allow me to see my records so I’m guessing that’s still
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the case yes and that’s quite important because sometimes if there’s we want to make sure that
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um the for confidentiality and and some some sensitivity issues that we make sure that we
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are safeguarding that those sort of things because we are looking after the patient’s
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record but there’s a whole host of things that yeah that will still need to be the case
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at the at the current current system but there’s a whole host of things there with the app and of
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course we’ve got to be very mindful that not everybody still has a smartphone and there’s a
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whole host of things in terms of digital inclusion that are we’ve got to be very careful
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of so not everybody uses an iphone or or equivalent androids I think they they
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might not be able to use it very well or they may only turn it on for emergency so we get
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yeah and that’s a bigger thing as well so with regards to the um that’s there’s a whole
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host of work going on within the within Cornwall Cornwall council connecting with the
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integrated care board on how how they can improve that and and certainly even been
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talking to they they do talk to the phone companies as well there are things that people
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can do there is something called iCornwall which you can is available through the council
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so you can get free you can get training or support to help you to navigate using your phone
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they also loan out devices or tablets to people and they can provide one-on-one support for people
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like that they’re also training up digital champions and I’ve been I was really keen to
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do that when I worked at the integrated care board to kind of see what we can do to help
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get digital champions in each practice or in within health there are quite a few around
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and there’s lots of work being going on particularly for people that in groups that
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can’t really access it such as homeless people for example so there’s a whole host of work going
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on but this could be more that could be done okay we’re coming to the end of the program
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but Emma you I saw you were burning to say something quickly yeah no it’s just um the NHS
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app just going back to that and you say not everybody has access to it I believe if you’re
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a carer for someone or if you’re a spouse you can apply for access to that person’s
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medical records so if if I think if you are caring for someone who doesn’t have access to
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phone or they might not be well enough to use their phone you can have access to that and
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you can see their appointments and and that that sort of thing yeah absolutely it’s called proxy
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access and and you still need to have the permission of the person to release your medical
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information to them and but um that is absolutely available and people use it quite
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a bit there’s plenty more to chat about there’s so much to talk about but unfortunately
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for this week’s episode we’re coming to the end and I’ve just got to highlight that um you told
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me in the previous podcast that I am an expert where I’ve been telling everyone I am not an
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expert I will put it this way I’m not a doctor I’m not a um a counselor or psychologist
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or anything like that I’m not a consultant are you no I don’t have any qualifications to
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say that I’m a doctor or a medical practitioner of any sort but you did say that we are
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expert patients with lipid experience absolutely 100%
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and you’re quite expert at giving a hug aren’t you I am because when you give a hug you get a hug
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when you give a little hug yeah you give a little hug, yeah you give a little hug when you give
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a little hug, yeah you give a little hug I always pull the microphone away because I’ve
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blown the whole system up by the amount of noise and what I have noticed is
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that our guest hasn’t partaken in it at this time. I think we need to do it once
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more and have everyone say when you give a hug you get a hug. That’s so much better.
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It’s cheesy but there’s nothing wrong with cheese. Are we going to go to the
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competition about this one? No, I was just going to say this. It is so important to give
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hugs. Having that physical contact with someone, it is true. I know we make it a
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bit cheesy but it is true when you give someone a hug it’s very difficult for
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them not to hug you back. You have mentioned about the loneliness thing
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and it is so important to have someone just to, without the words, to
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give you support because a hug you don’t need words. Exactly, and it doesn’t
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have to be a long hug either. And it can be with a donkey or a cat or a dog.
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Let’s not go down that. We’ll have you back on the show.
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You’ve passed the test of the podcast and you haven’t said,
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I can’t do that one again. Okay, thank you very much for joining us on the
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Cornwall Cancer Cafe podcast once more. Thank you. Thank you very much
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Matthew and Emma, always a pleasure. So goodbye, see you next week. See you next week.
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Visit our website www.cancercafe.org. Thanks to the National Lottery Community Fund
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for supporting this podcast.